PARTICIPANT INFORMATION STATEMENT
Purpose of Volunteer Research Registry
Our program conducts many studies to advance scientific knowledge about obsessive compulsive disorder (OCD), body dysmorphic disorder (BDD), body dysmorphic disorder by proxy (BDDBP), tic disorders, hair pulling, skin picking, hoarding disorder, and olfactory reference syndrome (ORS). This research is made possible by people like you being willing to participate in our clinical research. Because we frequently develop new research studies, we have created a Volunteer Research Registry to keep people updated on studies for which they might be eligible.
Description of Registry and Risks
Should you choose to be included in the registry, we will save some basic information about you such as your contact information, diagnosis (if any), and prior study participation in a secure password-protected database. We will then notify you if we have a new study for which you might be eligible. We are committed to protecting the privacy of our registry participants. Only our staff have access to the registry. Should we contact you about a study, we will be discreet. For example, if you choose to receive information by mail, any letters will not be labeled as being sent from the OCD and Related Disorders Program. Participation in our registry is completely voluntary and does not affect the healthcare you receive in the Partners system. You may also choose to have your information removed from the registry at any time. Joining the registry does not indicate your consent to participate in a research study, only that you are willing to receive information about studies.
If you have would like to join our registry, please complete the information below. If you have any questions about the registry, or would like your information changed or removed, please call us at 1-866-6MGH-OCD. If you wish to speak to someone not involved in the research, contact the Partners Human Research Committee at 617-424-4100.