I am just learning about PANDAS. I have a 23 year old son who displays many of the symptoms. He had strep throat at about sixteen months, and almost overnight, he became severely hyperactive. He was an early talker, and spoke full sentences before he could walk. He has many OCD issues. He cannot touch certain things. He paces, particularly when stressed. He will only shower at my home, even though he has his own apartment. He is obsessive about body cleanliness. If anything touches his clothes he has to change, sometimes shower again. He uses body spray six or eight times a day. He was diagnosed with ADHD at the age of six. He was diagnosed with ODD at the age of twelve. He rarely sleeps, and when he does, he doesn't sleep well. He says that he hates sleep. He must be constantly busy. He has serious social anxiety in professional situations, and cannot speak on the telephone in a professional capacity. He refuses to see doctors or get any type of medical treatment. He does not trust doctors. He will not speak about his mental health issues including his rages and his depression to anyone but myself. He complains of body aches daily, specifically his back and his hips.
He is the eldest of five children. None of my other children have the same issues that he does. Nobody in the house is allowed to do dishes or wash his clothes except me. If he suspects there is a speck of anything on a dish, he cannot touch the dish. All cups have to be sniffed before they are used. All laundry is sniffed before wearing. I am not even sure if he uses the bathroom anywhere but at my house. He sleeps at his apartment, but spends all day at my house. In the evenings he will go to a friend's house (just one), but returns to my house every couple of hours.
I would love to get some input on his condition. I have been looking for answers for years. His condition seems to be getting worse all of the time. I have no support because he refuses medical help and I am a single mother.