sounds like you are getting the medical runaround which parents with pandas/pans kids routinely get. there is an article that i wrote with a mother at: www.ocfoundation.org
here are some web sites with information.
if possible, i would go to the new Mass General Hospital clinic headed by Dr. Kyle Williams. he could probably give you the best advice. i know he is swamped now but is working his way down the list of patients. he is great.
all best wishes,
Michael Jenike, MD