Home › Forums › Obsessive Compulsive Disorder (OCD) › is OCD treatable? is there hope for some, but not all? › Re: is OCD treatable? is there hope for some, but not all?
Susan, My son has PANDAS (PANS) and Lyme. We first treated PANDAS very aggressively for a year with continuous antibiotics, steroid burst, tonsillectomy, IVIG, then plasmapheresis. Only the plasmapheresis helped him. It yeilded a 60% reduction in symptoms. However, after two months, even those gains plateaued and steadily declined. At that point we began to look for infections other than strep that might be undermining his treatment. We found that our son had Lyme and Bartonella. Now, after an additional year (and several months of IV antibiotics for the Lyme) our son is 80% recovered and holding steady (9 months post IV antibiotic treatment).
Now that we have the Lyme and Bartonella treated I am finding that we are able to manage our son's PANDAS more effectively. Recently, he had a sudden reemergence of OCD when strep went through his class. (We maintain him on prophylactic antibiotics but apparently the one he was on did not fight the strain of strep he was exposed to well enough.) We made a quick switch of oral antibiotics and the OCD “evaporated” within days. PANDAS management success! For our son, tracking down and dealing with all the underlying infections paved the way for successful PANDAS management. I hope this might be helpful to you. Hang in there!